Tag Archives: Amy Sequenzia

Stop Combating Me

Amy Sequenzia for Autism Women’s Network:
http://autismwomensnetwork.org/article/stop-combating-me

The enemy

Terrorists

Criminals

Deadly diseases

We get together, we put on special and reinforced gear, we arm ourselves with weapons we know will, at least, hurt our enemy, or even exterminate the “evil”.

That’s the mentality, the current picture of a nation and a world so deep in wars, refugee camps full of diseases and despair, and of people without hope.

When I hear the word “combat”, I see men and women wearing heavy war gear, armed with machine guns and night vision goggles; I see an army of doctors and scientists, wearing hazmat suits, ready for a battle with the latest outbreak of a dangerous disease that can kill millions.

I am Autistic. I am very disabled and I need supports and accommodations. I am also an activist, with great plans for my future and with a lot to say. I am accomplished and happy. I have friends that I love and they love me back.

I am NOT:

The enemy

A disease

A tragedy

Suffering

Causing pain

Why do I have to hear my government saying that who I am needs to be exterminated, like the enemy or a disease?

Why are the hateful words of groups like Autism Speaks, which completely ignore the voices of Autistic people, more important than my right to exist?

Why is the complacency of other so-called advocacy groups considered more valid than the outcry of Autistic self-advocates and our families, friends and allies?

The Combating Autism Act spends more than 97% of its budget on research that seeks to find a cure for autism. Since a cure is not possible, the research moves to finding a cause for autism.

After that, comes prevention. Preventing me. Preventing people like me from being born.

Combat autism, prevent autism.

Destroy autism, prevent more Autistics from being born

Eugenics.

Why is my government in the business of eugenics?

All this “combating” is an attempt to make the larger public believe that autism is an epidemic, that Autistics never experience joy, that our existence will bankrupt the economy.

This is fallacy.

I am Autistic and autism cannot be separated from me.

Combat autism, you combat me.

I was promised equal rights, which I am still fighting for.

Before that, I was promised the right to life. There were no conditions. I am a person, I have the right to be.

There is a lot we need to combat, exterminate, eradicate.

Autism is not one of those. Autistics aren’t either.

Let’s combat segregated housing

Let’s combat unemployment of Autistics

Let’s combat segregated classrooms

Let’s combat restraint and seclusion

Let’s combat silencing of Autistics

Let’s combat therapies that seek to “normalize” us, therapies that hurt us

Let’s combat lack of acceptance

Let’s combat ignorance

Let’s combat hatred

Let’s combat stigma

Stop Combating Me

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Filed under #stopcombatingme, ASAN, Autism, Autistic, Boycott Autism Speaks, Flashblog, Uncategorized

Stop Combating Me – Why I Am Against Euthanasia

Amy Sequenzia on Ollibean:
https://ollibean.com/2014/03/11/stop-combating-euthanasia/

Today is “Stop Combating Me” flashblog. We are not the enemy but the way legislation is written puts us in real danger.

'Fight Autism' in black  the word Autism is covered with red banner with 'Ignorance' over the top. Image from "Musings of an Aspie"
Because I, as a disabled person, am not safe from wrong assumptions, stigma and hatred.

Belgium passed legislation that allows children of any age to be euthanized. Supporters say there are safeguards and protections that guarantee that only terminally ill children, suffering unbearable pain, and with parental consent would be granted the death at the hands of doctors.

To me, there are not enough guarantees.

It is a slippery slope. The child will probably hear this from the family before she even understands what is at stake:

*I* am tired of your suffering
*I* can’t bear to see you like this
*I* hope your pain ends soon
*I* wish I could put an end to this

It is about the parent (family) before it is about the child. It is about manipulation (even not so conscious manipulation). Children are vulnerable and immature, naturally. Change the situation where a sex predator manipulates a child into saying the “relationship” is consensual, and the idea of a child making such important decision would not be accepted as informed and mature.

The euthanasia slippery slope gets even more dangerous. It gets dangerous for people like me.

Disabled lives are not valued. When we are murdered, it is called “mercy” killing. In my country, there is legislation that calls for a national effort to “combat” me.

The Combating Autism Act is the result of lobbying from groups that never listen to Autistics, that call me a tragic destroyer of marriages, that affirm I suffer and am in pain, that say I will bankrupt the economy.

Some of these groups’ members like to post videos of their Autistic children in their most vulnerable moments. They post videos of their children having meltdowns as if this is the only thing the children do all day, every day; parents who talk about their children as if they are the enemy that invaded and controls the family life.

They want to combat autism by eliminating Autistics, by preventing Autistics, as if we are the enemy. They promote eugenics.

See why I fear euthanasia?

This specific legislation from Belgium allows euthanasia of a suffering child, with a terminal disease, who is in constant pain.

Autism is not an illness, but it is for life. So, yes we are going to die Autistic. Not from autism, but this detail seems to conveniently scape some people and organizations.

The Combating Autism Act treats autism as an illness and the legislation supporters say we are suffering and in pain. The Autistic child in America becomes the terminally ill and suffering child from Belgium.

Many of us cannot speak or lack a reliable method of communication, or a method that is understandable to the majority.

What happens in one part of the world influences people all over the world. When two dangerous legislations collide, my life is in danger, Autistic lives are in danger, disabled lives are in danger.

Stop combating children
Stop combating Autistic children
Stop combating Autistics
Stop combating us.
Stop combating me.

Tell Congress to Reform the Combatting Autism Act

– See more at: https://ollibean.com/2014/03/11/stop-combating-euthanasia/#sthash.V5yhLkzU.dpuf

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Filed under #stopcombatingme, ASAN, Autism, Autistic, Boycott Autism Speaks, Flashblog, Uncategorized